Wednesday, April 24, 2019

SCI Model System Researchers Present at American Spinal Injury Association's Annual Meeting



A host of Spinal Cord Injury Model System (SCIMS) researchers presented papers at the American Spinal Injury Association's annual meeting held April 2-5, 2019, in Honolulu, HI. This meeting uniquely integrates disciplines germane to SCI research, medicine, rehabilitation, and community-based care by offering a broad perspective of topics in workshop, instructional course, oral, and scientific poster formats. Below is a list of participants who have submitted conference presentation information to MSKTC. 


Jenn Coker, MPH, modular project lead at Rocky Mountain Regional Brain Injury System, presented, "Complementary and integrative healthcare utilized by people with spinal cord injury." 

Kimberly Monden, PhD, Mitch Sevigny, MS, Susan Charlifue, PhD, Jenn Coker, MPH, Leslie Morse, DO, Jeffrey Berliner, DO, and Ellen Severe, OTR, of  Rocky Mountain Regional Brain Injury System, and Heather B Taylor, PhD, project director at Texas Spinal Cord Injury Model System at TIRR Memorial Hermann, presented, "Associations between insurance provider and assistive technology use one year after tetraplegic spinal cord injury: Findings from the Spinal Cord Injury Model Systems Database."

Matt Davis, MD, clinical medical director at Texas Spinal Cord Injury Model System at TIRR Memorial Hermann, along with Ann Bryden, OT, and Kim Anderson-Erisman, PhD, presented "Advocacy and spinal cord injury: Past, present and future."

Leslie Morse, DO, Susan Charlifue, PhD, and Jenn Coker, MPH, co-project directors and researcher at
Rocky Mountain Regional Brain Injury System, Heather Taylor, PhD, project director at Texas Spinal Cord Injury Model System at TIRR Memorial Hermann, and David Chen, co-principal investigator at Midwest Regional Spinal Cord Injury Care System, presented, "Utilization of complementary and integrative healthcare by people with spinal cord injury."

Allen Heinemann, PhD, Arun Jayaraman, PT, PhD, Chaithanya Mummidisetty, MS, Daniel Pinto, PT, PhD, and Jamal Spraggins, MS, of  Midwest Regional Spinal Cord Injury Care System, Susan Charlifue, PhD, Candy Tefertiller, PT, DPT, NCS, Heather Taylor, PhD, and Shio-Hsin Chang, PT, PhD, of Texas Spinal Cord Injury Model System at TIRR Memorial Hermann, and  Catherine Furbish, PT, DPT, and  Edelle Field-Fote, PT, PhD, FAFPTA, of Southeastern Regional Spinal Cord Injury System, presented, "Experience of robotic exoskeleton use at four spinal cord injury model systems centers."
Matt Davis, MD, clinical medical director at Texas Spinal Cord Injury Model System at TIRR Memorial Hermann, along with Stephen McKenna, MD, and James Crew, MD, presented, "Instructional course on acute management and respiratory care after spinal cord injury."

Argyrios Stampas, MD, researcher at Texas Spinal Cord Injury Model System at TIRR Memorial Hermann, along with Emily Robbins, DO, and M. Singh presented, "A retrospective chart review to determine whether infections following traumatic spinal cord injury (tSCI) are associated with changes in motor scores during acute inpatient rehabilitation."

Susan Robinson-Whelen, PhD, researcher at
Texas Spinal Cord Injury Model System at TIRR Memorial Hermann, Heather Taylor, PhD, Jose Vega BS, Rosemary Hughes, PhD,  Eva Widerstrom-Noga, DDS, PhD, Amie Urquieta, and Rachel Markely, MPH, presented "Loneliness among men and women with SCI: Preliminary evidence of risk factors."


Ralph Marino, MD, project director at Regional SCI Center of the Delaware Valley, Diana Cardenas, MD, co-project director of South Florida SCIMS, David Chen, co-principal investigator at Midwest Regional Spinal Cord Injury Care System, and Steven Kirshblum, MD, co-director at Northern New Jersey Spinal Cord Injury System presented "Trends in rate of ASIA impairment scale conversion in traumatic spinal cord injury."


Yu-Ying Chen, MD,  Michael J. DeVivo, PhD, and Huacong Wen, MS, of National Spinal Cord Injury Statistical Center, presented "Demographic and health profile of people living with spinal cord injury 2013-2017."

Huacong Wen, MS, Yu-Ying Chen, MD, and Tapan Mehat, PhD, of National Spinal Cord Injury Statistical Center, presented "Body mass index and mortality after spinal cord injury."


Amie McLain, MD, along with Joseph Troncale, MD, Li Zhang, PhD, Y Chen, and Claire Kalpakijan, PhD, presented "Prospective study of pregnancy in women with and without spinal cord injury."

Kazuko Shem, MD, Cria-May M Khong, BS, and Ben Dirlikov, BS, researchers at the previously- funded SCI Model System Center, Santa Clara Valley Medical Center, presented "Suicidal ideation identified using PHQ-9: Model systems follow-up study."





Tuesday, February 19, 2019

SCI Model System Researchers and MSKTC Contribute to SCI 2020

The National Institute of Neurological Disorders and Stroke’s SCI 2020: Launching a Decade for Disruption in Spinal Cord Injury Research conference was held February 12-13, 2019, in Bethesda, Maryland. The goal of SCI 2020 is to initiate discussion across the SCI research community to launch a new decade of research that disrupts traditional barriers and brings about collaborative efforts to address the key research questions in spinal cord injury research. SCI Model System Program and MSKTC are partners of the conference.

Michael Boninger, MD, co-director of University of Pittsburgh Model Center on Spinal Cord Injury, was the Keynote Speaker. Session chair and facilitators included researchers from Southeastern Regional Spinal Cord Injury Model System (Edelle Field-Fote, PT, PhD; James Krause, PhD). Researchers from the following currently-funded SCI Model System centers led the conference dissemination efforts: Rocky Mountain Regional SCI System (Leslie Morse, DO) and Northern New Jersey Spinal Cord Injury System (Jeanne Zanca, PhD, MPT). National Spinal Cord Injury Statistical Center presented a poster to promote the awareness and public utilization of the National Spinal Cord Injury Model Systems Database for collaborative research in improving the lives of people with SCI. Model System researchers from University of Alabama at Birmingham Spinal Cord Injury Model System (Ceren Yarar-Fisher, PhD), National Spinal Cord Injury Statistical Center (Yu-Ying Chen, MD), Northern New Jersey Spinal Cord Injury System (Jeanne Zanca, PhD), Southern California Spinal Cord Injury Model System (Sara Mulroy, PhD), Rocky Mountain Regional SCI System (Leslie Morse, DO; Jennifer Coker, MPH), Regional SCI Center of the Delaware Valley (Mary Schmidt Read, PhD), Spaulding New England Regional Spinal Cord Injury Center (Ross Zafonte, DO; Chloe Slocum, MD), and Southeastern Regional Spinal Cord Injury Model System (Casey Kandilakis, DPT) contributed as note-takers during the conference. The Model Systems Knowledge Translation Center presented a poster to promote the SCI Model System Program, the National SCI Model System Database, and free research-based resources to support individuals living with SCI. The full conference webcast for Day 1, which features a panel of individuals with SCI discussing their perspectives on care and research, and Day 2 is available online.Learn more here, and view the speaker list here.

Tuesday, September 18, 2018

Model Systems Researchers to Present at the American Congress of Rehabilitation Medicine (ACRM)


The following Model Systems researchers have informed the MSKTC of presentations at the 2018 ACRM annual conference. The event will be held from September 30-October 3 in Dallas, TX.
  • Susan Robinson-Whelen, Ph.D. (Texas Spinal Cord Injury Model System at TIRR) will present a paper, “GoHealthySCI: Primary and Secondary Outcomes of an Online Peer-facilitated Weight Management Pilot Study," in collaboration with Stephanie Silveira, Ph.D., Rosemary B. Hughes, Ph.D., Margaret A. Nosek, Ph.D., Heather B. Taylor, Ph.D., Tracey A. Ledoux, Ph.D., Lisa Wenzel, M.D., Lauren Diaz, M.S., and the GoHealthySCI Consortium.
  • Susan Robinson-Whelen, Ph.D. (Texas Spinal Cord Injury Model System at TIRR) will present a poster, “The Effect of Hurricane Harvey on the Health Practices of GoHealthySCI Program Participants”, on behalf of the GoHealthSCI Consortium.
  • Tessa Hart, Ph.D., FACRM; (Moss Traumatic Brain Injury Model System); Shannon Juengst, Ph.D., CRC (North Texas Traumatic Brain Injury Model System) presented "Mobile technologies for assessment and treatment in traumatic brain injury" with Amanda Rabinowitz, Ph.D. 
In addition, Cindy Cai, Ph.D. and Cynthia Overton, Ph.D., co-project directors of the Model Systems Knowledge Translation Center (MSKTC), will present "Making Research Relevant: How the MSKTC Develops and Disseminates User Friendly Research."

SCI Model System Researchers Present at the 57th International Spinal Cord Society Annual Scientific (ISCoS) Meeting

The following SCI Model System researchers have informed the MSKTC of presentations at the 57th International Spinal Cord Society Annual Scientific (ISCoS) meeting:


  • Jennifer Coker, M.A., and Susan Charlifue, Ph.D., presented “ReInventing Yourself after Spinal Cord Injury: Results from two randomized controlled trials.” 
  • Susan Charlifue, Ph.D. Allen Heinemann, Ph.D., ABPP (RP), FACRM, and Candy Tefertiller, PT, DPT presented “Experience of robotic exoskeleton use at four spinal cord injury model systems centers.”
  • Allen Heinemann, Ph.D., ABPP (RP), FACRM participated in a symposium titled, “Spirituality after SCI: What role does it play, and how can we better incorporate it into rehabilitation practice."

Monday, September 17, 2018

SCI Model System Researchers Present at the Academy of Spinal Cord Injury Professionals (ASCIP) Meeting

The following SCI Model System researchers have informed the MSKTC of presentations at ASCIP's 2018 Educational Conference and Expo:

Wednesday, September 20, 2017

Model Systems Researchers Present at the 94th Annual American Congress of Rehabilitation Medicine Conference


Model Systems researchers are participating in the American Congress of Rehabilitation Medicine (ACRM) 94th Annual Conference in Atlanta, GA, October 23-28, 2017. Model Systems researchers who have submitted conference presentations to the MSKTC are listed below. Additional information can be found in the conference program here.   


James A. Haley Veterans’ Hospital Traumatic Brain Injury Model System
  • Risa Nakase-Richardson, PhD; Daniel Schwartz, MD; Mo Modarres, PhD; and Kathleen Bell, PhD (North Texas Traumatic Brain Injury Model System) will present a four-hour instructional course, "Improving recognition and treatment of sleep apnea in the rehabilitation setting."
  • Risa Nakase-Richardson, PhD; Jeanne Hoffman, PhD (University of Washington Traumatic Brain Injury Model System); and Jennifer Travis-Seidl, PhD (Tampa VA Neuropsychology Post-Doctoral Fellow) will present a symposium, “Measurement of sleep in neurorehabilitation: The role of actigraphy.”
  • During the three-part symposium, “Health Services Research Efforts within the ACRM: Parts I, II, & III,” Risa Nakase-Richardson, PhD, FACRM will moderate one session and present, “Using comparative effectiveness research to improve accessibility of sleep apnea screening and diagnostic tests for persons with moderate to severe TBI” and Jill Massengale, DNP will present “A framework and model for stakeholder involvement in research.”
  • Risa Nakase-Richardson, PhD, FACRM, Jeanne Hoffman, PhD, and Tamara Bushnik, PhD, FACRM will present in the symposium, “Advancing TBI Sleep Research: Three Multi-Center Studies within the TBI Model System Program." 
  • Racine Brown, PhD, Risa Nakase-Richardson, PhD, Xinyu Tang, PhD, Marc Silva, PhD, Tamara McKenzie Hartman, Ph.D., Daniel Schwartz, PhD, and Mo Modarres are coauthors on the poster, “Sleep Apnea and BMI Trajectory: A VA TBI Model Systems Study.” This poster was selected for the Early Career Award for the Brain Injury Interdisciplinary Special Interest Group at ACRM.
  • Bridget Cotner, PhD, Noelle Carlozzi, Ph.D., Rael Lange, PhD, Lou French, PhD, Danielle O’Connor, M.S., Risa Nakase-Richardson, PhD, Tracy Brickell, PhD, are coauthors on a poster “Quality of Sleep in Caregivers of Service Members and Veterans with Traumatic Brain Injury.”  This poster was selected for the Early Career Award for the Military and Veteran Networking Group at ACRM.
  • Danielle Cool, PhD, Daniel Schwartz, MD, Karel Calero, MD, (University of South Florida),  Risa Nakase-Richardson, PhD, FACRM,  Kayla Larosa, M.S., and Marc Silva, PhD will present a poster, “Positive Airway Pressure Adherence in a VA TBI Model Systems Cohort: A Feasibility Study.”

Midwest Regional Spinal Cord Injury Care System (MRSCICS)
  • Allen Heinemann, PhD will present the workshop, "The NIH Toolbox," which will focus on the advantages of modern psychometric test theory applications in assessment. He will also present several symposia, including: "Spinal Cord Injury Patient Reported Outcomes"; "Specifying Rehabilitation Treatments"; "Integrating Research into a Clinical Setting"; and "How to Get Published." In addition, he will present the following: "Quality Measurement in Inpatient Rehabilitation" and "Promoting Adoption of Standardized Outcome Measures using the Rehab Measures Database." 
  • Anne Deutsch, PhD will speak at a seminar titled “Assessing Quality of Care." 
  • Richard Lieber, PhD will present the symposium, “Integrating Research into a Clinical Setting."
  • Rowland Chang, MD will present, “Development of the Ability Quotient." 
  • James Sliwa, DO will present, “Integrating research into Clinical Setting." He will also present in a symposium, “Development of the Ability Quotient."
  • Linda Ehrlich-Jones, PhD will present, “Promoting Adoption of Standardized Outcome Measures Using the Rehabilitation Measures Database."

North Texas Traumatic Brain Injury Model System (NT-TBIMS)
  • Shannon Juengst, PhD, CRC, will present as part of the instructional course “Enhancing TBI Research Baseline and Outcomes Measurement with Biomarkers and Biometrics.” She will present a poster titled “Variability in emotional symptoms and fatigue measured via mobile ecological momentary assessment after TBI,” which was selected as a finalist for the Measurement Networking Group Early Career Best Poster award; she also presented this same work in a symposium featuring all MNG Early Career best poster finalists. She will also present an oral symposium, "Between Comorbidities and 1-year Outcomes Among Adults 50 Years and Older With Moderate-to-Severe TBI."
  • Librada Callender; Katherine Froehlich-Grobe, PhD; Simon Driver, PhD; and Laura Petrey, MD are presenting the poster, "Traumatic Brain Injury Healthcare Utilization: Examining the Impact of Race and Insurance."
  • Miller, J., Randi Dubiel, D.O., Monica Bennett, PhD, Cynthia Dunklin; Librada Callender, and Simon Driver, PhD, are presenting the poster, "Sleep and Pain in Acute Traumatic Brain Injury Rehabilitation."
  • Jennifer Zumsteg, MD; Randi Dubiel, D.O.; Don Fogelberg, PhD are presenting the poster, "TWILIGHT: Feasibility of Treatment with Light after TBI."
  • Simon Driver, PhD; Megan Reynolds are presenting the poster, "The Social Network – Using Social Media to Support Individuals with TBI in a Health Promotion Program."
  • Simon Driver, PhD is presenting the oral symposium, "6-month Weight Loss Results From a Healthy Lifestyle Intervention for People with TBI."
  • Kathleen Bell, MD is presenting the oral symposium, "Improving recognition and treatment of sleep apnea in the rehabilitation setting to improve outcome."
Rocky Mountain Regional Brain Injury System (RMRBIS)
  • Jessica Ketchum and Dave Mellick, MA will present the symposia, "Getting the Most Out of the Traumatic Brain Injury Model Systems National Database."
  • Jessica Ketchum, PhD, will present, "Functional Outcome Trajectories after TBI in a Nationally Representative Weighted Dataset"
  • Tessa Hart, PhD (Moss Traumatic Brain Injury Model System), Kristen Dams-O’Connor, PhD (New York Traumatic Brain Injury Model System); Risa Nakase- Richardson, PhD (James A. Haley Veterans’ Hospital Traumatic Brain Injury Model System); Jessica Ketchum, PhD, and John Corrigan, PhD (Ohio Regional Traumatic Brain Injury Model System) will present the symposia, "Ohio State University Traumatic Brain Injury as a Chronic Health Condition: Long-Term Functional Change and Associated Comorbidities"
Rusk Rehabilitation Traumatic Brain Injury Model System (RR-TBIMS)
  • Steven Flanagan, M.D., Donna Langenbahn, PhD presented the pre-conference course, “Concussion: Managing Recovery Inertia in Complex Phenotypes: A Case Study Model."
  • Tamara Bushnik, PhD presented the symposium, “Cultural Considerations and Impacts for Individuals with Traumatic Brain Injury”
  • Joseph Rath, PhD, presented the symposium, “The Emotional Measure of Man: Objective Approaches to Assessing Emotional Function in Traumatic Brain Injury”
  • Tamara Bushnik, PhD presented the symposium, “Advancing TBI Sleep Research: Three Multi-Center Studies within the TBI Model System Program”
  • Ellen Hada, BA, Coralynn Long, MS, Angela Man, BS, & Tamara Bushnik, PhD presented the poster, “Traumatic Brain Injury and Offense Classification: Longitudinal Impact of Felony and Criminal Arrests Post-Injury”
  • Ellen Hada, BA, Coralynn Long, MS, Angela Man, BS, & Tamara Bushnik, PhD presented the poster, “Hidden Homelessness and Traumatic Brain Injury: Defining and Characterizing Housing Instability”
  • Ellen Hada, BA, Coralynn Long, MS, Angela Man, BS, & Tamara Bushnik, PhD presented the poster, “The Additive Risk of Criminal Arrest to Physical, Mental, and Social Functioning Post-Traumatic Brain Injury”
  • Coralynn Long, MS, Michelle Smith, MPH, Joseph Rath, PhD & Tamara Bushnik, PhD presented the poster, “Clusters of Vulnerable Group Membership in Acute TBI Rehabilitation."
South Florida Spinal Cord Injury Model System (SF-SCIMS)
  • Mark Nash, PhD, presented the symposium, "Cardiometabolic Disorders in Individuals with Spinal Cord Injury."
Spaulding New England Regional SCI Center (SNERSCIC):
  • Bethlyn Houlihan, MSW, MPH, co-director of Dissemination and Knowledge Translation, will Chair a 4-hour instructional pre-course, “Shifting Focus: Delivering Peer-Led, Person-Centered Support Services in SCI Rehabilitation, Community Settings & Online,” including SNERSCIC co-author Ms. Sarah Everhart Skeels. Ms. Houlihan will also present a poster, "RCT of a Peer-Led Phone-Based Empowerment Intervention for Persons with Chronic SCI Improves Health Self-Management,” including SNERSCIC co-authors Ms. Sarah Everhart Skeels, Ms. Diana Pernigotti, Dr. David Rosenblum, and Dr. Alan Jette.
  • Tim Belliveau, PhD, co-investigator for the former New England Regional SCI Center for the 2011-2016 grant cycle, will present a poster, “Demonstration of a Software Application for Optimal Prediction of Functional Outcomes After Spinal Cord Injury,” including SNERSCIC co-authors Dr. Alan Jette, Dr. David Rosenblum, Ms. Bethlyn Houlihan, and Ms. Diana Pernigotti.
  • Dr. Hannah Mercier, PhD, OTR/L, a fellow working with SNERSCIC, will present a poster, “Core Resistance Training Strength Improvements Relate to Gains in Balance for Adults with Paraplegia”, including SNERSCIC co-author Dr. J. Andrew Taylor.
  • Dr. J. Andrew Taylor, PhD, co-project director, will present in a symposium, “Experimental Approaches to Enhance Physiological Function after Spinal Cord Injury” moderated by Dr. Hannah Mercier.




Friday, March 24, 2017

SCI Model System Researchers Participate in the 2017 American Spinal Injury Association Annual Scientific Meeting

A host of SCI model systems researchers will present and deliver lectures to advance the field of spinal cord injury at the 2017 American Spinal Injury Association Scientific Meeting held in Albuquerque, NM from April 26-29, 2017. The following SCI model systems researchers have submitted conference presentation information to the MSKTC.

Spaulding New England Regional Spinal Cord Injury Center (SNERSCIC)
  • Mary D. Slavin, PhD, will present the Stephen M. Haley Memorial Lectureship, "The SCI Pediatric Activity Measure, and the Pediatric Measure of Participation," on April 26, 2017. The lecture is part of the Howard H. Steel Conference on Pediatric Spinal Cord Injury/Dysfunction, a full day pre-course of the 2017 American Spinal Injury Association (ASIA) Scientific Meeting.
  • Bethlyn Houlihan, MSW, MPH, co-director of Dissemination and Knowledge Translation, will present, "Improved Health Self-Management through a Peer-Led Telephone-Based Empowerment Intervention for Persons with Chronic SCI."  She will also present the poster, "Development of a SCI Virtual Coach to Prevent Pressure Ulcers."
  • Sarah Everhart Skeels, MPH, will present the poster, "How an SCI Peer Health Coach Influences Empowerment and Health Self-Management with Peers."
  • Marcalee Alexander, MD, will present the instructional course, "TeleSCI:  Let's Get Going!" Bethlyn Houlihan, MSW, MPH, and Sarah Everhart Skeels, MPH, will also participate in the course panel to discuss an overview of virtual coach technology and the SCI Virtual Coach.