Friday, July 24, 2015

Historic Gathering of 40 and 50-year SCI Survivors

On June 7, 2015, the spinal cord injury (SCI) research team from the Medical University of South Carolina, under the leadership of Dr. James Krause, held a historic celebration in Minneapolis Minnesota, bringing together about study participants and guests, including 10 SCI survivors who are more than 50 years post-injury. The more than 50 people with SCI in attendance averaged 41.8 years post-injury and only a handful were less than 30 years post-injury. The event commemorated and celebrated 40 years of research for this study, initiated by Dr. Nancy Crewe, at the University of Minnesota in 1973. The celebration was held in Nicollet Island Pavilion on the Mississippi River in downtown Minneapolis.

Former President of the National SCI Association, John Schatzlein, received the Career Contributions Award, much to the delight of the attendees, many of whom he had known for nearly 50 years and for whom he has served as a peer mentor. Barbara Armour was presented with the Longevity after Injury Award, having reached 58 years since the onset of her SCI. Other awards were given, including the Community Contributor Award to Margo Imdieke Cross, who has spent countless hours advocating for accessible environments in Minnesota, Staff Lifetime Contributor Award [presented posthumously] and to Sarah Lottes, who had a tireless commitment to SCI and who literally worked with the research team until the day she died in February at age 72. Laurel Cibick accepted a plaque of appreciation on behalf of her mother, Dr. Nancy Crewe, who initiated the study.

The collective accomplishments of the participants are amazing. There have been 2200+ participants since the study’s inception in 1973 and they have collectively worked for over 12,500 years, logging more than 22,000,000 hours of gainful employment.

Several current and former participants were recognized for their outstanding individual accomplishments, including Dr. David Gray, who was one of true pioneers of disability rights and a leader in SCI research, both as an investigator and presidential appointee as Director of the National Institute for Disability and Rehabilitation Research. Dr. Gray also passed away in February, and he had been the first individual to plan on attending the event, saying “I will be there”. He was there in spirit, as were so many others.

The event was a reminder of the magnitude of accomplishments by so many people with SCI. Dr. James Boen wrote the book The World’s Oldest Living Quadriplegic prior to his death for having lived 56 years with SCI, a total eclipsed by two current participants. Larry Kegan was a boyhood friend of Bob Dylan and played on stage with him. Other individuals have written books, including Robert Peters (A Dive Too Deep) and Mike Patrick (I Still Believe in Tomorrow). Darcy Pohland was a television reporter for a local news station.

When the study was initiated in 1973, living 40 years with SCI was viewed as unattainable, yet there were 26 people at the event to have lived more than 40 years with SCI. Those attending were proud of their involvement with research since knowledge gained from their participation has helped us to better understand SCI and the changes that occur as people age with SCI.
If someone wonders what they can do after SCI, they need only to look to what this group of people has done. They have lived and participated in their communities, been in long-term relationships, and worked to better their lives and the lives of others. All has been accomplished despite the harsh health consequences of SCI and aging, and the barriers to marriage and employment that often come with needing financial assistance for the high cost of SCI.

This was a truly inspiring event, even for those of us who have lived for decades with SCI. Our study participants have faced many unique challenges, but despite that, have worked tirelessly to make this world a better place for all of us with SCI. Together, we have worked to facilitate accessible environments, promote employment, and advocate for policies that create opportunities. We look forward to the next generation of people with SCI building upon these accomplishments and with hope for anyone with SCI that they have the opportunity to live long, healthy, and fulfilling lives.

Wednesday, April 22, 2015

SCI Model System Researchers Work Published in Archives of Physical Medicine

Researchers and collaborators from the University of Michigan Spinal Cord Injury Model System (U-M SCIMS) co-authored six recently published articles in the Archives of Physical Medicine and Rehabilitation. See the publications and abstracts below.

Klyce, D. W., Bombardier, C. H., Davis, T. J., Hartoonian, N., Hoffman, J. M., Fann, J. R., & Kalpakjian, C. Z.. (2015). Distinguishing grief from depression during acute recovery from spinal cord injury. Archives of Physical Medicine and Rehabilitation. Advance online publication. doi:10.1016/j.apmr.2015.02.018

View abstract here.

Richards, J. S., Bombardier, C. H., Wilson, C. S., Chiodo, A., Brooks, L., Tate, D. G., Temkin, N. R., … Fann, J. R. (2015). Efficacy of Venlafaxine XR for the treatment of pain in patients with spinal cord injury and major depression: A randomized, controlled trial. Archives of Physical Medicine and Rehabilitation, 96(4), 680-689. doi:10.1016/j.apmr.2014.11.024

View abstract here.

Saunders, L. L., Clarke, A., Tate, D. G., Forchheimer, M., & Krause, J. S. (2015). Lifetime prevalence of chronic health conditions among persons with spinal cord injury. Archives of Physical Medicine and Rehabilitation, 96(4), 673-679. doi:10.1016/j.apmr.2014.11.019

View abstract here.

McCullumsmith, C. B., Kalpazian, C., Richards, J. S., Forchheimer, M., Heinemann, A., Richardson, E., Wilson, C., … Bombardier, C. H. (2015). Novel risk factors associated with current suicidal ideation and lifetime suicide attempt in individuals with spinal cord injury. Archives of Physical Medicine and Rehabilitation. Advance online publication. doi:10.1016/j.apmr.2014.12.017

View abstract here.

Tate, D. G., Forchheimer, M., Bombardier, C. H., Heinemann, A. W., Neumann, H. D., & Fann, J. R. (2015). Differences in quality of life outcomes among depressed spinal cord injury trial participants. Archives of Physical Medicine and Rehabilitation, 96(4), 340-348. doi:10.1016/j.apmr.2014.09.036

View abstract here.

Huggins, J. E., Moinuddin, A. A., Chiodo, A. E., & Wren, P. A. (2015). What would brain-computer interface users want: Opinions and priorities of potential users with spinal cord injury. Archives of Physical Medicine and Rehabilitation, 96(3), S38-S45. doi:10.1016/j.apmr.2014.05.028

View abstract here.

Model System Researcher to Serve as Keynote Speaker at International Conference

Michael L. Boninger, M.D., director of the University of Pittsburgh Model System on Spinal Cord Injury, will serve as keynote speaker at the 2015 Rehab Week Valencia about the research prize for the Fürst Donnersmarck Foundation on the field of neuro-rehabilitation. The prize is awarded for current scientific research work in the field of neurological rehabilitation of people with acquired damage to the nervous system. The focus of the work should be on post-clinical long-term rehabilitation, and we are particularly interested in interdisciplinary rehabilitation strategies and methods, as well as the examination of scientific effectiveness and efficiency (outcome research), and how these developments meet the special needs of rehabilitation providers, funding bodies and political institutions (socio-economic effects). Learn more about the prize below.

The Board of Trustees of the Fürst Donnersmarck-Foundation Berlin, which is dedicated to the rehabilitation of people with physical and multiple disabilities, awards a research prize for neuro-rehabilitation.The prize money of EUR 30,000 can be distributed between more than one winner. An additional five commendations may also be awarded in the amount of EUR 3,000.

The prize is awarded for current scientific research work in the field of neurological rehabilitation of people with acquired damage to the nervous system. The focus of the work should be on post-clinical long-term rehabilitation, and we are particularly interested in interdisciplinary rehabilitation strategies and methods, as well as the examination of scientific effectiveness and efficiency (outcome research), and how these developments meet the special needs of rehabilitation providers, funding bodies and political institutions (socio-economic effects).

You may submit academic dissertations and theses, published project reports, book publications and specialist journal articles which have been completed within the past two years. The prize will be awarded by the Board of Trustees of the foundation on the basis of the recommendation of a jury made up of scientists and doctors working in the field of rehabilitation.
In your application, please enclose the following documents as pdf-files:

1. The scientific paper(s) or dissertation, with a summary
2. A justification for the submission in terms of the goals of the prize
3. Curriculum vitae with scientific career
The decision of the trustees is final and cannot be contested.

Applications must be submitted by 30 June 2015 to: forschungspreis@fdst.de

For further information please click on www.fdst.de/researchprize-2015-the-announcement/

Tuesday, October 21, 2014

Model Systems Researchers Present at 2014 ACRM Conference

A host of TBI and SCI model system researchers recently presented at the 91st Annual ACRM Conference in Toronto, Canada on October 7-11. View the presentation highlights below.

Dr. Allen Heinemann, Ph.D., co-director of the Midwest Regional Spinal Cord Injury Care System (MRSCICS), delivered five presentations: "How to get Published: Authorship, Reporting Guidelines, Reviewing in Medical Rehabilitation”, “Developing and Reporting Research Evidence That Makes a Difference in Systematic Reviews”, “Environmental Factors Item Development for Persons with Stroke, TBI, and SCI”, “Developing Outcomes Data Management and Reporting Capacity for Musculoskeletal Rehabilitation Programs”, & “Mediating Entities in the Knowledge Transition Cycle as Catalysts for Organizational Change”.

Dr. Anne Deutsch, RN, PhD, CRRN, director of the SCI Database for the Midwest Regional Spinal Cord Injury Care System (MRSCICS), lead the instructional course Ensuring the Delivery of High-Quality Fall Prevention: How Rehabilitation Professionals Engage in Quality Improvement. Dr. Deutsch also delivered multiple presentations during the symposium: Navigating US Post-Acute Care Policy: Where Do I Begin?, “The Role of Research in Reimbursement”, and Best Practices for Reporting Rehabilitation Research.

Hannah Mercier, MS, OTR/L presented an analysis of the New England Regional Spinal Cord Injury Center’s (NERSCIC) study, Care Call. The presentation," Differential impact and use of a telehealth intervention by persons with MS or SCI," examined differences between Care Call samples participants with multiple sclerosis (MS) or spinal cord injury (SCI) on demographic and clinical characteristics, patterns of engaging with Care Call, and outcomes of depression severity, skin integrity, healthcare access and utilization, and participation. Her analysis extends previous research revealing that this intervention can improve depression for adults with MS and SCI, and enhance healthcare access and physical independence for those with MS.

Yuying Chen, MD, PhD, director of the National Spinal Cord Injury Statistical Center (NSCISC) presented "Spinal cord injury epidemiology: global perspective, implications for best practice," for the symposium titled “The World Health Organization’s International Perspectives on Spinal Cord Injury Report: Implications." She also presented " Geographic variation and environmental risk factors for kidney stones after spinal cord injury," for the symposium titled “Environment Matters: Contribution of Geographic Data to Understanding Spinal Cord Injury Incidence and Rehabilitation Outcomes“

Tuesday, September 23, 2014

SCI Model System Researchers Present at the International Spinal Cord Society Meeting (ISCoS)

A host of SCI model systems researchers participated in the 53rd International Spinal Cord Society (ISCoS) Annual Scientific Meeting held September 2nd -4th in MECC, Maastricht, The Netherlands. Below is a list of model systems researchers that participated in the conference.
 
  • Dr. Allen Heinemann, Ph.D., co-director of the Midwest Regional Spinal Cord Injury Care System (MRSCICS), gave a presentation entitled Development and evaluation of environmental factor instruments for use following spinal cord injury. Additionally, Dr. Heinemann presented the poster Patient-centered care in individuals with spinal cord injury/ disorders. The poster detailed a collaborative project between research scientists from The Rehabilitation Institute of Chicago, Northwestern University’s Feinberg School of Medicine, and the Department of Veteran Affairs.

  • Dr. Denise Tate, project director of the University of Michigan Spinal Cord Injury Model System (UM-SCIMS)  presented data on a project related to neurogenic bowel and bladder and discussed ways of integrating assessments of bowel and bladder management as well as impact on quality of life during a workshop on new measurements for SCI care. The plan is for these measures to be integrated with the patient’s electronic medical records so doctors have access to them before they see the SCI patient and thus can use their time more efficiently to address treatment. The University of Michigan uses MiChart as the electronic medical record system which allows doctors to put their information directly into these records. Patients have access to their patient portals to communicate with their providers of care. Dr. Tate also attended the consumer workshop on peer mentoring services by several international organizations and how these services can help improve the quality of life of persons with SCI around the world.

  • The presentations from the University of Alabama at Birmingham Spinal Cord Injury Model System (UAB SCIMS)  and National Spinal Cord Injury Statistical Center (NSCISC):

1. Chen Y, Tang Y, McLain AB, Iezzoni LI. Current pregnancy among women with spinal cord injury. Poster presented at the 2014 Annual Meeting of the International Spinal Cord Society, MECC, Maastricht, The Netherlands, September 2-4, 2014.

2. McLain AB, Chen Y, Lloyd LK, Alexander MS. The use of neurologic examination to predict awareness and control of lower urinary tract function post spinal cord injury. Presented at the Annual Meeting of the International Spinal Cord Society, MECC, Maastricht, The Netherlands, September 2-4, 2014.

Thursday, August 21, 2014

SCI Model Systems Featured in Three Publications



Researchers from the University of Michigan Spinal Cord Injury Model System (UM-SCIMS), Midwest Regional Spinal Cord Injury Care System (MRSCIS), Northern New Jersey Spinal Cord Injury System (NNJSCIMS), Northwest Regional Spinal Cord Injury Center (NWRSCIS) and Southeastern Regional Spinal Cord Injury Care System collaborated on publications featured in Topics in Spinal Cord Injury Rehabilitation and Archives of Physical Medicine and Rehabilitation. View publications and abstracts below:

1. Tate D and Forchheimer M. Review of Cross-Cultural Issues Related to Quality of Life After Spinal Cord Injury. Topics in Spinal Cord Injury Rehabilitation. 2014 SUM; 20(3):181-190

Researchers from University of Michigan Spinal Cord Injury Model System (UM-SCIMS). Access the abstract here.

2. Wong, A.W.K., Heinemann, A.W., Wilson, C.S., Neumann, H., Fann, J.R., Tate, D.G., Forchheimer, M., Richards, J.S., Bombardier, C.H. Predictors of participation enfranchisement after spinal cord injury: The mediating role of depression and moderating role of demographic and injury characteristics(2014) Archives of Physical Medicine and Rehabilitation, 95 (6), pp. 1106-1113.

Researchers from University of Michigan Spinal Cord Injury Model System (UM-SCIMS), Midwest Regional Spinal Cord Injury Care System (MRSCIS), and Northwest Regional Spinal Cord Injury Center (NWRSCIS) . Access the abstract here.

3. Kirshblum, S.C., Biering-Sørensen, F., Betz, R., Burns, S., Donovan, W., Graves, D.E., Johansen, M., Jones, L., Mulcahey, M.J., Rodriguez, G.M., Schmidt-Read, M., Steeves, J.D., Tansey, K., Waring, W. International standards for neurological classification of spinal cord injury: Cases with classification challenges (2014) Topics in Spinal Cord Injury Rehabilitation, 20 (2), pp. 81-89.

Researchers from University of Michigan Spinal Cord Injury Model System (UM-SCIMS) and Northern New Jersey Spinal Cord Injury System (NNJSCIMS). Access the abstract here.

Thursday, June 19, 2014

SCI Model System Research Recently Featured in Symposium and Publications

Model system researchers from Midwest Regional Spinal Cord Injury Care System (MRSCICS) presented Physical Interventions to Maximize Motor Recovery following Spinal Cord Injury at the Fourth Annual Spinal Cord Injury Symposium: Contemporary Trends in Spinal Cord Injury Management. The conference was held in Baltimore, MD on June 16, 2014. In addition, MRSCICS work appeared in four publications:


  • “Potential Feasibility of High Intensity, Variable Stepping Practice in Individuals Across Neurological Disorders”, Consortium for Multiple Sclerosis Centers, Annual Conference, Dallas, TX, May 2014 

  • Kim HE, Thompson CK, Hornby TG. Muscle activation varies with contraction mode in human spinal cord injury. Muscle Nerve. 2014 May 13. doi: 10.1002/mus.24285. [Epub ahead of print] PMID: 24825184. Access the abstract here

  • Leech KA, Kinnaird CR, Hornby TG. Effects of serotonergic medications on locomotor performance in humans with incomplete spinal cord injury. J Neurotrauma. 2014 Apr 17. [Epub ahead of print] Access the abstract here

  • Jayaraman A, Thompson CK, Rymer WZ, Hornby TG. Short-term maximal-intensity resistance training increases volitional function and strength in chronic incomplete spinal cord injury: a pilot study. J Neurol Phys Ther. 2013 Sep;37(3):112-7. PMID: 23673372. Access the abstract here.