Thursday, October 27, 2016

Model Systems Researchers to Present at the 93rd Annual American Congress of Rehabilitation Medicine Conference

Updated 11/18/16: Model Systems researchers participated in the American Congress of Rehabilitation Medicine (ACRM) 93nd Annual Conference in Chicago, IL, October 30-November 4, 2016. Model Systems researchers who have submitted conference presentations to the MSKTC are listed below. Additional information can be found in the conference program.


Midwest Regional Spinal Cord Injury Care System 
  • Cindy Nowinski, MD, PhD; Allen Heinemann, PhD, FACRM; Susan Magasi, PhD; and J. Slotkin presented the workshop, “NIH Toolbox: State of the Art Outcome Measures for Rehabilitation Practice and Research.”
  • Allen Heinemann, PhD, FACRM; Leighton Chan, MD, MPHD, FACRM; Helen Hoenig, MD, OT, MPH; and Glenn Collins presented the symposium, “How to Get Published: Authorship, Reporting Guidelines, Reviewing in Medical Rehabilitation.
  • Anne Deutsch, PhD; Allen Heinemann, PhD, FACRM; John Loft, PhD; and Laura Smith, PhD presented the symposium, “Quality Measure Developments in Medical Rehabilitation."
  • David Cella, PhD; Allen Heinemann, PhD, FACRM; Pamela Kisala, MA; David Tulsky, PhD; and David Victorson, PhD presented the symposium, “What do SCI-QOL scores mean? Applying the “Bookmarking” Standard-Setting Methodology in a Rehabilitation Context.”
Moss Traumatic Brain Injury Model System

  • Tessa Hart, PhD, project director at Moss Traumatic Brain Injury Model System, organized and spoke at a symposium, “Adapting behavioral health interventions for cognitively impaired populations.” She also spoke at a symposium organized by Co-Director John Whyte, MD, PhD, “You can only treat what you can define: Specifying rehabilitation treatment targets;” co-authored 3 posters; and assumed her role as newly elected Secretary of the Brain Injury Interdisciplinary Special Interest Group. 
  • John Whyte, MD, MPH presented in a symposium, "Individualized Quantitative Behavioral Assessment in Patients with Disorders of Consciousness."
  • Amanda Rabinowitz, PhD presented a poster as a first-time ACRM attendee.

National Spinal Cord Injury Statistical Center 
  • Yuying Chen, MD, director of the National Spinal Cord Injury Statistical Center presented the poster, "Analysis of Racial Differences in Weight Change of Individuals with Spinal Cord Injury over 5 years. In addition, she presented, "Demographic and Injury Trends of Traumatic Spinal Cord Injury in the United States, 1972-2014." Dr. Chen presented a four-hour instructional course, "Understanding Obesity and Pain after Spinal Cord Injury Through Preclinical, Qualitative and Epidemiologic Research." She also presented a symposium, "Advancing Knowledge on Spinal Cord Injury research through the use of comparable databases."
New England Regional Spinal Cord Injury Center Model System
  • Bethlyn Houlihan, MSW, MPH, Associate Director of the New England Regional Spinal Cord Injury Center (NERSCIC) Model System, presented a poster, "My Care My Call; a Peer-Led, Telephone-based Intervention for Persons with Spinal Cord Injury Improves Self-Management Behaviors."
The Rocky Mountain Regional Brain Injury System
  • Robert Kowalski, MD, MPH presented, “The role of ischemic stroke on outcome in moderate to severe traumatic brain injury.”  
  • Jessica Ketchum, PhD presented, “Annual Raking and Weighting of the Traumatic Brain Injury Model Systems National Database of Enhanced Population Estimation and Inference.” 
  • Christina Baker presented the poster, “Internet and Social Media Use After Traumatic Brain Injury.”  
Rusk Rehabilitation Traumatic Brain Injury Model System 
  • Tamara Bushnik, PhD presented the instructional course, "Fatigue, Impaired Alertness and Daytime Sleepiness in Traumatic Brain Injury."
  • Joseph Adams, PT, DPT, NCS; Tara Denham, MA, PT; Steven Flanagan, MD; Felicia Fraser, PhD; Neera Kapoor, OD, MS, FAAO, FCOVD-A; Sanjeev Kothare, MD; Donna Langenbahn, PhD, FACRM; Yuka Matsuzawa, PsyD; Mia Minen, MD, MPH; Geraldine Pagnotta, MPT, MPH; Mia Palazzo, PT, DPT, OCS, Cert. MDT; John Rizzo, MD; Edna Schneider, MA, CC-SLP; Mara Sproul, RN, MPA, CRRN, RN-BC; and Margaret Waskiewicz, MS, OTR/L presented the instructional course, "Concussion and the Road to Recovery: Navigating Obstacles, Overcoming Challenges, and Striving for Tailored Multi-Disciplinary Care."
  • Ellen Hada; Michael Juszczak; Coralynn Long, MS; Michelle Smith, MPH; S Shagalow; and Tamara Bushnik, PhD presented, "A Demographic Analysis of the Barriers and Supporters of Enrollment for Traumatic Brain Injury Model Systems (TBIMS) Research."
  • Michelle Smith, MPH; Coralynn Long, MS; and Tamara Bushnik, PhD presented the poster, "Supporting Factors for Follow-up Care in TBI Patients Post-Inpatient Discharge."
  • Michelle Smith, MPH; G Reimann; Coralynn Long, MS; Barbara Siminovich-Blok, ND, MS; and Tamara Bushnik, PhD presented, "A Center-Specific Demographic Analysis of Barriers to Retention in Traumatic Brain Injury Model Systems (TBIMS) Research."
South Florida SCI Model System
  • Mark S. Nash, Ph.D., FACRM, co-director of the South Florida SCI Model System, presented, "The Significance of Cardiometabolic Disease on Health and Function after Spinal Cord Injury" at a special symposium examining the Impact of Systemic Metabolism on Spinal Cord Function.
University of Michigan Spinal Cord Injury Model System
  • Denise Tate, PhD, the project’s principal investigator at the University of Michigan Spinal Cord Injury Model System, presented the poster, “Complications to Neurogenic Bowel and Bladder after Spinal Cord Injury: The Military Veteran’s Perspective.” She and other grant investigators from the University of Michigan were also co-authors on two other poster presentations, “Utilizing a Response Shift Model to Explain Quality of Life Following Spinal Cord Injury” and “The Impact of a Wellness Program on Persons with a Spinal Cord Injury.”
University of Pittsburgh Model Center on Spinal Cord Injury 
  • Lynn Worobey, PhD; Alicia Koontz, PhD; Nathan Hogaboom, BS; presented the symposium, “Independent Transfers: Why Technique is Important, How to Teach it, and Does Training Change it?                                
  • Deepan Kamaraj, MD presented the symposium, “A Comprehensive Review of Adult and Child Powered Mobility Driving Assessments and Training Interventions”
  • Lynn Worobey, PhD presented the paper, “Effects of Web-Based and In-Person Transfer Training on Individuals with Spinal Cord Injury”
  • Nathan Hogaboom, BS presented the paper, “Relationship Between Power-Wheelchair Skills And Measures Of Independence And Mobility In People With Spinal Cord Injury.”
  • Lynn Worobey, PhD presented the poster, “Clinician Competency with Wheelchair Maintenance and the Efficacy of a Wheelchair Maintenance Training Program”
  • Nathan Hogaboom, BS presented the poster, “Wheelchair Breakdowns, Adverse Consequences, and Pressure Ulcer Development in People with Spinal Cord Injury”
  • Deepan Kamaraj, MD presented the poster “Discriminative Ability Of The Quantitative Electric Powered Wheelchair Driving Metrics In VRSIM-2” and won an award for the poster.

University of Washington Traumatic Brain Injury Model System
  • Daniel Klyce, PhD; Charles Bombardier, PhD; and Jeanne Hoffman, PhD presented a symposium, "Research on Early Adjustment to Spinal Cord Injury: From Acute Rehabilitation to One Year Post-Injury."
  • Charles Bombardier, PhD; Jesse Fann, MD; Dawn Ehde, PhD; Rina Reyes, MD; and Jeanne Hoffman, PhD presented the poster, "Collaborative care for Pain, Depression and Physical Inactivity in an Outpatient SCI Clinic: the SCI-CARE Study."


Wednesday, May 18, 2016

Model System Center Researchers Publish Work in Multiple Journals

A host of SCI Model System Centers researchers recently published articles in a variety of journals. Learn more about publications by Model Systems researchers who have submitted information to the MSKTC below. 

Article: Association between Time-to-Rehabilitation and Outcomes Following Traumatic Spinal Cord Injury 
Journal: Archives of Physical Medicine and Rehabilitation
Model Systems Authors and Collaborators: Kurt Herzer, MSc; Allen Heinemann, PhD, Midwest Regional Spinal Cord Injury Care System; Yuying Chen, MD, PhD, National SCI Statistical Center (NSCISC); Marlis Gonzalez-Fernandez, MD

Article: Bowel Function after Spinal Cord Injury
Journal: Archives of Physical Medicine and Rehabilitation
Model Systems Authors and Collaborators: Gianna Rodriguez, M.D., University of Michigan Spinal Cord Injury Model System

Article: Early Detection of Pressure Ulcer Development Following Traumatic Spinal Cord Injury Using Inflammatory Mediators
Journal: Archives of Physical Medicine and Rehabilitation
Model Systems Authors and Collaborators: Shilpa Krishnan, PT, PhD; Patricia E. Karg, MS; Michael L. Boninger, MD, University of Pittsburgh Model Center on Spinal Cord Injury; Yoram Vodovotz, PhD; Greg Constantine, PhD; Gwendolyn A. Sowa, MD, PhD; David M. Brienza, PhD

Article: Effectiveness of Group Wheelchair Skills Training for People with Spinal Cord Injury: A Randomized Control Trial
Journal: Archives of Physical Medicine and Rehabilitation
Model Systems Authors and Collaborators: Lynn A. Worobey, PhD, University of Pittsburgh Model Center on Spinal Cord Injury; R. Lee Kirby, MD; Allen Heinemann, PhD, Midwest Regional Spinal Cord Injury Care System; Emily A. Krobot, MSW; Trevor A. Dyson-Hudson, MD, Northern New Jersey Spinal Cord Injury System; Rachel Cowan, PhD; Jessica Pedersen, OTR/L, Midwest Regional Spinal Cord Injury Care System; Mary Shea, OTR/L, Northern New Jersey Spinal Cord Injury System; Michael L. Boninger, MD, University of Pittsburgh Model Center on Spinal Cord Injury

Article: Evaluating the Psychometric Properties and Responsiveness to Change of Three Depression Measures in a Sample of Persons with Traumatic Spinal Cord Injury and Major Depressive Disorder
Journal: Archives of Physical Medicine and Rehabilitation
Model Systems Authors and Collaborators: Ryan T. Williams, PhD; Allen Heinemann, PhD, Midwest Regional Spinal Cord Injury Care System; Holly Demark Neumann, MPPA; Jesse R. Fann, MD, MPH, Northwest Regional Spinal Cord Injury System; Martin Forchheimer, MPP, University of Michigan Spinal Cord Injury Model System; Elizabeth J. Richardson, PhD, University of Alabama at Birmingham Spinal Cord Injury Model System; Charles H. Bombardier, PhD, Northwest Regional Spinal Cord Injury System

Article:
 Harmonization of Databases: A Step for Advancing the Knowledge about Spinal Cord Injury 
Journal: Archives of Physical Medicine and Rehabilitation
Model Systems Authors and Collaborators: Susan Charlifue, PhD, The Rocky Mountain Regional Spinal Injury System; Denise Tate, PhD, University of Michigan Spinal Cord Injury Model System; Fin Biering-Sorensen, MD, PhD, Stephen Burns, MD, ; Yuying Chen, MD, PhD, National SCI Statistical Center (NSCISC); Sophia Chun, PhD, Lyn B. Jakeman, PhD; Robert G. Kowalski, MBBCh, MS; Vanessa K. Noonan, PT, PhD; Philip Ullrich, PhD

Article: Patterns of Sacral Sparing Components on Neurological Recovery in Newly Injured Persons with Traumatic Spinal Cord Injury
Journal: Archives of Physical Medicine and Rehabilitation
Model Systems Authors and Collaborators: Steven C. Kirshblum, MD; Amanda L. Botticello, PhD, MPH, Northern New Jersey Spinal Cord Injury System; Trevor A. Dyson-Hudson, MD, Northern New Jersey Spinal Cord Injury System; Rachel Byrne, MA, Northern New Jersey Spinal Cord Injury System; Ralph J. Marino, MD, Regional SCI Center of the Delaware Valley; Daniel P. Lammertse, MD, Rocky Mountain Regional Spinal Injury System

Article:
 The Spinal Cord Injury-Functional Index/Assistive Technology Short Forms
Journal: Archives of Physical Medicine and Rehabilitation
Model Systems Authors and Collaborators: Mary Slavin, PT, MSPT, PhD. New England Regional Spinal Cord Injury Center; Pengsheng Ni, MPH, MD; David S. Tulsky, PhD, Northern New Jersey Spinal Cord Injury System; Pamela A. Kisala, MA; Allen Heinemann, PhD, Midwest Regional Spinal Cord Injury Care System; Susan Charlifue, PhD, The Rocky Mountain Regional Spinal Injury System; Denise Fyffe, PhD, Northern New Jersey Spinal Cord Injury System; Daniel E. Graves, PhD, Kentucky Regional Spinal Cord Injury Model System;  Ralph J. Marino, MD, Regional SCI Center of the Delaware Valley; Leslie R. Morse, DO, Spaulding-Harvard Spinal Cord Injury System; David Rosenblum, MD, New England Regional Spinal Cord Injury Center Network; Denise Tate, PhD, University of Michigan Spinal Cord Injury Model System; Lynn A. Worobey, PhD, University of Pittsburgh Model Center on Spinal Cord Injury; Mary Beth Dawson, Alan M. Jette, PT, PhD; New England Regional Spinal Cord Injury Center

Article:
 To What Extent Do Neighborhood Differences Mediate Racial Disparities in Participation after Spinal Cord Injury?
Journal: Archives of Physical Medicine and Rehabilitation
Model Systems Authors and Collaborators: Amanda L. Botticello, PhD, MPH, Northern New Jersey Spinal Cord Injury System; Mike Boninger, MD, University of Pittsburgh Model Center on Spinal Cord Injury; Susan Charlifue, PhD, The Rocky Mountain Regional Spinal Injury System; Yuying Chen, MD, PhD, National SCI Statistical Center (NSCISC);  Denise Fyffe, PhD, Northern New Jersey Spinal Cord Injury System; Allen Heinemann, PhD, Midwest Regional Spinal Cord Injury Care System; Jeanne M. Hoffman, PhD, Northwest Regional Spinal Cord Injury System; Alan Jette, PhD, MPH, New England Regional Spinal Cord Injury Center; Claire Kalpakjian, PhD, MS, University of Michigan Spinal Cord Injury Model System; Tanya Rohrbach, MS, Northern New Jersey Spinal Cord Injury System

Article: Trajectories of Life Satisfaction Five Years after Medical Discharge for Traumatically Acquired Disability
Journal: Archives of Physical Medicine and Rehabilitation
Model Systems Authors and Collaborators: Christopher R. Pretz, PhD, The Rocky Mountain Regional Spinal Injury System; Allan J. Kozlowski, PhD; Allen Heinemann, PhD, Midwest Regional Spinal Cord Injury Care System

Article: Assessment of the Relationship of Spiritual Well-being to Depression and Quality of Life for Persons with Spinal Cord Injury in Disability and Rehabilitation
Journal: Disability and Rehabilitation
Model Systems Authors and Collaborators: Catherine S. Wilson, PhD; Martin Forchheimer, MPP, University of Michigan Spinal Cord Injury Model System; Allen Heinemann, PhD, Midwest Regional Spinal Cord Injury Care System; Anne Marie Warren, PhD; Cheryl McCullumsmith, MD, PhD

Article:  Women's Experiences of Living with Neurogenic Bladder and Bowel after Spinal Cord Injury: Life Controlled By Bladder and Bowel
Journal: Disability and Rehabilitation
Model Systems Authors and Collaborators: Andrea Nevedal, PhD; Anna L Kratz; Denise Tate, PhD, University of Michigan Spinal Cord Injury Model System

Article:  Changes In Pain And Quality Of Life In Depressed Individuals With Spinal Cord Injury: Does Type Of Pain Matter? 
Journal: Journal of Spinal Cord Medicine
Model Systems Authors and Collaborators: Elizabeth J. Richardson, PhD, University of Alabama at Birmingham Spinal Cord Injury Model System; Larry G. Brooks, PhD;  J. Scott Richards, Ph.D., ABPP, University of Alabama at Birmingham Spinal Cord Injury Model System; Charles H. Bombardier, PhD, Northwest Regional Spinal Cord Injury System; Jason Barber; Denise Tate, PhD, University of Michigan Spinal Cord Injury Model System; Martin Forchheimer, MPP, University of Michigan Spinal Cord Injury Model System; Jesse R. Fann, MD, MPH, Northwest Regional Spinal Cord Injury System

Article:  Clinical Interpretation of the Spinal Cord Injury Functional Index (SCI-FI)
Journal: Journal of Spinal Cord Medicine
Model Systems Authors and Collaborators: Denise Fyffe, PhD, Northern New Jersey Spinal Cord Injury System; Claire Z. Kalpakjian, Ph.D., MS, University of Michigan Spinal Cord Injury Model System; Mary Slavin, PT, MSPT, PhD. New England Regional Spinal Cord Injury Center;  Pamela Kisala, Northern New Jersey Spinal Cord Injury System; Pengsheng Ni, MD;  Steven C Kirshblum, MD, Northern New Jersey Spinal Cord Injury System;  David S Tulsky, PhD, University of Michigan Spinal Cord Injury Model System; Alan M. Jette, PT, PhD; New England Regional Spinal Cord Injury Center

Article:  Measurement Properties of a Modified Measure of Participation for Persons with Spinal Cord Injury.
Journal: Journal of Spinal Cord Medicine
Model Systems Authors and Collaborators: Feng-Hang Chang, MPH; Pengsheng Ni, MD; Wendy Coster, PhD, OTR/L, FAOTA; Gale Whiteneck, Ph.D., FACRM, Rocky Mountain Regional Spinal Cord Injury System; Alan M. Jette, PT, PhD; New England Regional Spinal Cord Injury Center

Article:  Relational Empathy and Holistic Care in Persons with Spinal Cord Injuries
Journal: Journal of Spinal Cord Medicine
Model Systems Authors and Collaborators: Sherri L. LaVela, PhD, MPH; Allen Heinemann, PhD, Midwest Regional Spinal Cord Injury Care System; Bella Etingen, MA; Ana Miskovic, MA; Sara M. Locatelli, PhD; David Chen, PhD, Midwest Regional Spinal Cord Injury Care System

Article:  Linkage Between the Promis® Pediatric and Adult Emotional Distress Measures
Journal: Quality of Life Research
Model Systems Authors and Collaborators: Bryce B Reeve, David Thissen, Darren A DeWalt, I-Chan Huang, Yang Liu, Brooke Magnus, Hally Quinn, Heather E Gross, Pamela A Kisala, Pengsheng Ni, MD;  Stephen Haley, M J Mulcahey, PhD,  Susan Charlifue, PhD, The Rocky Mountain Regional Spinal Injury System; Robin A Hanks, Mary Slavin, PT, MSPT, PhD. New England Regional Spinal Cord Injury Center; Alan M. Jette, PT, PhD; New England Regional Spinal Cord Injury Center; David S Tulsky, PhD, University of Michigan Spinal Cord Injury Model System

Article: A Comparison of High vs Standard Tidal Volumes in Ventilator Weaning for Individuals with Sub-Acute Spinal Cord Injuries: A Site-Specific Randomized Clinical Trial
Journal: Spinal Cord
Model Systems Authors and Collaborators: James Fenton, MD; Mary Warner, MD; Susan Charlifue, PhD, The Rocky Mountain Regional Spinal Injury System; Daniel P. Lammertse, MD, Rocky Mountain Regional Spinal Injury System; Amy Dannels-McClure, MS; Martinez Lonnie, MD; Matthew Fleishman, MD; Kelly Mowrey, NP-C; Cate McGraw, NP-C

Article:
 Family Caregivers of Individuals with Spinal Cord Injury: Exploring the Stresses and Benefits
Journal: Spinal Cord
Model Systems Authors and Collaborators: Susan Charlifue, PhD, The Rocky Mountain Regional Spinal Injury System; Amanda L. Botticello, PhD, MPH, Northern New Jersey Spinal Cord Injury System; Stephanie A. Kolakowsky-Hayner, PhD, CBIST, FACRM, Southern California Spinal Cord Injury Model; J. Scott Richards, Ph.D., ABPP, University of Alabama at Birmingham Spinal Cord Injury Model System; David S Tulsky, PhD, University of Michigan Spinal Cord Injury Model System

Article: Characteristics of Individuals with Spinal Cord Injury Who Use Cannabis for Therapeutic Purposes
Journal: Topics in Spinal Cord Injury Rehabilitation
Model Systems Authors and Collaborators: Claudia Drossel, PhD; Martin Forchheimer, MPP, University of Michigan Spinal Cord Injury Model System; Michelle Meade, PhD, University of Michigan Spinal Cord Injury Model System

Article: Medical Management of Neurogenic Bladder with Oral Therapy
Journal: Translational Andrology and Urology
Model Systems Authors and Collaborators: Anne P. Cameron, MD, University of Michigan Spinal Cord Injury Model System


Thursday, April 21, 2016

SCI Model System Researchers Participate in the 2016 American Spinal Injury Association Annual Scientific Meeting

A host of SCI model systems researchers presented and delivered lectures to advance the field of spinal cord injury at the 2016 American Spinal Injury Association Scientific Meeting held in Philadelphia, PA from April 14-16, 2016. The following SCI model systems researchers have submitted conference presentation information to the MSKTC:
 
New England Regional Spinal Cord Injury Center  
  • Alan Jette, PhD, PT, principal investigator for the New England Regional Spinal Cord Injury Center served as a panel member during the Demographics/Measurement session and presented, SCI-FI/AT Short Forms Achieve High Measurement Reliability.
  • David Rosenblum, MD, co-principal investigator for the New England Regional Spinal Cord Injury Center  presented the poster, New England Spinal Cord Injury Toolkit: In Theory and In Practice. This poster covers the development and usage methods of the SCI Toolkit as well as feedback and future plans for the resource.
  • Bethlyn Houlihan, associate director of the New England Regional Spinal Cord Injury Center presented the poster, Strategies for Peer Telecounseling: Opening the Black Box in Chronic Spinal Cord Injury. This poster highlights process data trends from a recently completed site-specific randomized control trial, My Care My Call, a peer-led telehealth intervention aimed to empower individuals to address their primary healthcare needs.
Rocky Mountain Regional Spinal Injury System
  • Susan Charlifue, PhD, FISCoS, FACRM, co-project director of the Rocky Mountain Regional Spinal Injury System presented Reinventing Yourself After SCI: An Educational Intervention to Enhance Self-Efficacy Skills.
  • Daniel Lammertse, MD, co-project director of the Rocky Mountain Regional Spinal Injury System presented Diaphragm Pacing Follow Up.
South Florida Spinal Cord Injury Model System
  • Elizabeth Roy Felix, PhD, project director of South Florida Spinal Cord Injury Model System presented, Effectiveness of an At-home Exercise Program on Shoulder Pain and Pathology. The objective of this presentation was to discuss results of the STOMPS strengthening protocol for improving shoulder pain in persons with SCI and evaluate quantitative ultrasound measures of supraspinatus tendon health before and after STOMPS program.
  • Mark Nash PhD, co-principal investigator of South Florida Spinal Cord Injury Model System presented, Energy Expenditure and Fuel Homeostasis During and After a Single Bout of Circuit Resistance Exercise in Persons with and without Spinal Cord Injury. The objective of this presentation is to analyze fuel use during and following exercise in persons with paraplegia and tetraplegia.
  • Elizabeth Roy Felix, PhD and George Mejia-Galvis, MD from the South Florida Spinal Cord Injury Model System presented the poster, Demographic factors affecting the development of neuropathic and non-neuropathic pain after SCI.
Regional Spinal Cord Injury Center of the Delaware Valley
  • Ralph Marino, MD, project director of the Regional Spinal Cord Injury Center of the Delaware Valley presented, Responsiveness of the Capabilities of Upper Extremity Test at the General Session. This presentation assessed the responsiveness of the Capabilities of Upper Extremity Test (CUE T). Dr. Marino also presented, Spinal Cord Injury Exam and Classification at the Spine Symposium. 
Northern New Jersey Spinal Cord Injury System (NNJSCIS)
  • Steven Kirshblum, MD co-director of the Northern New Jersey Spinal Cord Injury System gave two lectures titled, When You Come to a Fork in the Road: Lessons Learned and a Map for the Future and Patterns of Sacral Sparing Components and Neurological Recovery in Newly Injured Persons with Traumatic Spinal Cord Injury.

Friday, March 18, 2016

SCI Model System Center Publishes Seven Manuscripts

Recent publications by Investigators from the University of Michigan Spinal Cord Injury Model System.

Rodriguez GM. Bowel Function After Spinal Cord Injury. Archives of Physical Medicine and Rehabilitation. FEB 2016;97(2):339-340. URL: http://www.archives-pmr.org/article/S0003-9993(15)01146-6/pdf

Cameron AP. Medical management of neurogenic bladder with oral therapy. Translational Andrology and Urology. FEB 2016;5(1):51-62. URL: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4739981/pdf/tau-05-01-051.pdf

Nevedal A, Kratz AL, Tate DG. Women's experiences of living with neurogenic bladder and bowel after spinal cord injury: life controlled by bladder and bowel. Disability and Rehabilitation. 2016;38(6):573-581. URL: http://www.tandfonline.com/doi/pdf/10.3109/09638288.2015.1049378

Drossel C, Forchheimer M, Meade MA. Characteristics of Individuals with Spinal Cord Injury Who Use Cannabis for Therapeutic Purposes. Topics in Spinal Cord Injury Rehabilitation. WIN 2016;22(1):3-12.

 Fyffe D, Kalpakjian CZ, Slavin M, Kisala P, Ni P, Kirshblum SC, Tulsky DS, Jette AM. Clinical interpretation of the Spinal Cord Injury Functional Index (SCI-FI). The Journal of Spinal Cord Medicine. e-pub date: 05 FEB 2016 URL: http://www.tandfonline.com/doi/pdf/10.1080/10790268.2015.1133483

Richardson EJ, Brooks LG, Richards JS, Bombardier CH, Barber J, Tate D, Forchheimer MB, Fann JR. Changes in pain and quality of life in depressed individuals with spinal cord injury: does type of pain matter? The Journal of Spinal Cord Medicine. 2016; e-pub date: 04 MAR 2016. URL: http://www.tandfonline.com/doi/pdf/10.1080/10790268.2016.1151145

Williams R, Heinemann A, Neumann HD, Fann JR, Forchheimer M, Richardson E, Bombardier CH. Evaluating the Psychometric Properties and Responsiveness to Change of Three Depression Measures in a Sample of Persons with Traumatic Spinal Cord Injury and Major Depressive Disorder. Archives of Physical Medicine and Rehabilitation. e-pub date: 06 FEB 2016. URL: http://dx.doi.org/10.1016/j.apmr.2016.01.017

Thursday, January 7, 2016

Using Social Media to Promote your Research: MSKTC Suite of Tools and Information

MSKTC produced a webinar titled Using Social Media to Promote Your Research; a recording of the webinar is available here: http://www.msktc.org/Model-Systems-Grantees/webinars. This webinar was designed to help the attendees understand the pervasiveness of social media; understand who uses social media; learn about the uses for different social media platforms; think about what they can do with social media; learn about the steps needed to manage social media; and see how a few Model Systems are effectively using their own social media. As a follow up to this webinar, researchers can develop a social media strategic plan using the following three tools developed by the MSKTC:

  • Guide for Developing an MSKTC Social Media Plan: This document is a go-to reference for researchers to navigate different social media platforms and to plan, execute, monitor and optimize their social media efforts;
  • MSKTC Social Media Development Workbook: This workbook accompanies the Guide to help researchers work through all aspects of a social media plan to communicate about their research;
  • MSKTC Social Media Development Content Calendar: This Excel sheet helps researchers map out their use of social media by adapting it to the frequency with which they plan to use social media.
The tools can be found here: http://www.msktc.org/Knowledge-Translation/Social-Media-Guide.

In addition to the webinar and tools developed by MSKTC, a web clinic on social media analytics was held to review the types of analytics available for three platforms: Facebook, Twitter, and Pinterest. Participants discussed how to use that data to inform and improve research dissemination and outreach through social media. The web clinic introduced best practices in using analytics, measuring engagement through analytics, creating data reports, and knowing what questions to ask of the researcher’s organization if they do not manage their own social media platforms. A recording of the web clinic is available here: http://www.msktc.org/Model-Systems-Grantees/webinars.

Wednesday, October 21, 2015

Work of a Model System Researcher Published in Multiple Publications

Yu-Ying Chen, MD, PhD, researcher at the University of Alabama at Birmingham Spinal Cord Injury Model System (UAB-SCIMS) was published in three journals: Journal of Urology, Topics in Spinal Cord Injury Rehabilitation, and Spinal Cord. View the citations and abstracts below.

  • Nahm LS, Chen Y, DeVivo MJ. LK Lloyd. Bladder cancer mortality after spinal cord injury over 4 decades. J Urol 2015;193(6):1923-1928. View abstract.
  • Chen Y, Tang Y, Allen V, DeVivo MJ. Aging and spinal cord injury: External causes of injury and implications for prevention. Top Spinal Cord Inj Rehab 2015;21(3):218-226. View abstract.
  • Biering-Sørensen F, Alai S, Anderson K, Charlifue S, Chen Y, DeVivo M, Flanders A, Jakeman L, Jones L, Kleitman N, Lans A, Noonan VK, Odenkirchen J, Steeves J, Tansey K, Widerström-Noga E. Common data elements for spinal cord injury clinical research: a National Institute for Neurological Disorders and Stroke Project. Spinal Cord 2015;53:265-277. View abstract.

Friday, July 24, 2015

Historic Gathering of 40 and 50-year SCI Survivors

On June 7, 2015, the spinal cord injury (SCI) research team from the Medical University of South Carolina, under the leadership of Dr. James Krause, held a historic celebration in Minneapolis Minnesota, bringing together about study participants and guests, including 10 SCI survivors who are more than 50 years post-injury. The more than 50 people with SCI in attendance averaged 41.8 years post-injury and only a handful were less than 30 years post-injury. The event commemorated and celebrated 40 years of research for this study, initiated by Dr. Nancy Crewe, at the University of Minnesota in 1973. The celebration was held in Nicollet Island Pavilion on the Mississippi River in downtown Minneapolis.

Former President of the National SCI Association, John Schatzlein, received the Career Contributions Award, much to the delight of the attendees, many of whom he had known for nearly 50 years and for whom he has served as a peer mentor. Barbara Armour was presented with the Longevity after Injury Award, having reached 58 years since the onset of her SCI. Other awards were given, including the Community Contributor Award to Margo Imdieke Cross, who has spent countless hours advocating for accessible environments in Minnesota, Staff Lifetime Contributor Award [presented posthumously] and to Sarah Lottes, who had a tireless commitment to SCI and who literally worked with the research team until the day she died in February at age 72. Laurel Cibick accepted a plaque of appreciation on behalf of her mother, Dr. Nancy Crewe, who initiated the study.

The collective accomplishments of the participants are amazing. There have been 2200+ participants since the study’s inception in 1973 and they have collectively worked for over 12,500 years, logging more than 22,000,000 hours of gainful employment.

Several current and former participants were recognized for their outstanding individual accomplishments, including Dr. David Gray, who was one of true pioneers of disability rights and a leader in SCI research, both as an investigator and presidential appointee as Director of the National Institute for Disability and Rehabilitation Research. Dr. Gray also passed away in February, and he had been the first individual to plan on attending the event, saying “I will be there”. He was there in spirit, as were so many others.

The event was a reminder of the magnitude of accomplishments by so many people with SCI. Dr. James Boen wrote the book The World’s Oldest Living Quadriplegic prior to his death for having lived 56 years with SCI, a total eclipsed by two current participants. Larry Kegan was a boyhood friend of Bob Dylan and played on stage with him. Other individuals have written books, including Robert Peters (A Dive Too Deep) and Mike Patrick (I Still Believe in Tomorrow). Darcy Pohland was a television reporter for a local news station.

When the study was initiated in 1973, living 40 years with SCI was viewed as unattainable, yet there were 26 people at the event to have lived more than 40 years with SCI. Those attending were proud of their involvement with research since knowledge gained from their participation has helped us to better understand SCI and the changes that occur as people age with SCI.
If someone wonders what they can do after SCI, they need only to look to what this group of people has done. They have lived and participated in their communities, been in long-term relationships, and worked to better their lives and the lives of others. All has been accomplished despite the harsh health consequences of SCI and aging, and the barriers to marriage and employment that often come with needing financial assistance for the high cost of SCI.

This was a truly inspiring event, even for those of us who have lived for decades with SCI. Our study participants have faced many unique challenges, but despite that, have worked tirelessly to make this world a better place for all of us with SCI. Together, we have worked to facilitate accessible environments, promote employment, and advocate for policies that create opportunities. We look forward to the next generation of people with SCI building upon these accomplishments and with hope for anyone with SCI that they have the opportunity to live long, healthy, and fulfilling lives.